Do you know what Marfan’s syndrome is? Helping Nika to raise money for life-saving open-heart surgery

NikaThis inherited congenital heart defect involves the enlargement of the aorta – the large vessel that carries blood from the heart to the body’s tissues. This enlargement occurs near the aortic valve where the aorta leaves the heart – and may also affect the part of the aorta that carries blood to the body (the ascending aorta).There may also be abnormalities in the structure of the aortic valve and/or the mitral valve which connects the left atrium and left ventricle.

Marfan’s Syndrome (also known as arachnodactyly) is named for Dr. Antonin Marfan, who first described this condition in 1896. It is caused by a genetic defect involving the body’s connective tissue and occurs in approximately 1 of every 10,000 people.

Well here’s the story for today – a doctor in Sudan told a nurse in East Coast USA to contact Global Heart Network for a patient, a young mother named Nika, in Ukraine. Family members are trying to secure funds for her surgery which will take place we hope in Isanbul very shortly.

Read Nika’s story and help if you can

Heartfelt Thanks

Annabel

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