Congenital Heart Defect Awareness Week 7th February to 14th February

Make Global Heart Network your Valentine Today and make a difference for the Heart Community in low and middle-income countries.
Make Global Heart Network your valentine today and make a difference for the heart community in low and middle-income countries.

Global Heart Network is committed to help increase access to cardiac care via our technology platform that matches needs with resources in low and middle-income countries (LMICs). The GHN Matching solution through the platform www.globalheartnetwork.net allows stakeholders (NGOs, health care professionals etc.) to connect their needs and find possible resources. Over the next weeks we particularly excited to illustrate how the platform works by sharing stories of how posting needs on www.globalheartnetwork.net platform finds solutions. This week in the series of successful matchmaking stories we tell you about how baby Peninah from Nairobi, Kenya was matched for open heart surgery.

Penniah before her operation
Peninah before her operation

We first heard Peninah’s story when she was six months old, and her need was posted on the GHN platform. Doctors in Kenya determined that Penny was suffering from a congenital heart defect that required surgery, which was not possible for a child of her age and too costly for her family.   Having posted the need on the GHN platform in the ‘Clinical Services’ category, with the details and medical information, GHN was able to connect Peninah with some possibilities for surgery.  Finally the solution for Peninah was to go to Geneva thanks to the resource post from HUG Hospital in Geneva, and help for her travel and visa formalities found through the GHN platform.   Thanks to this life saving surgery, Peninah is now an active toddler who brings so much love and joy to all who surround her, especially her big brother, sister, and parents. Although GHN continues to be in the start up phase, we are working to expand our network and improve our online tools and find resources so that one-day stories like Peninah and many others that have found solutions via our network will be commonplace throughout the world.

Peniah after her operation
Peninah after her operation

Post your Needs and Resources

If you are interested in learning more on how to post Needs and Resources to the GHN platform please click the following links on How to post a need and How to post a resource. Currently on our platform you are able to post your needs and resources for clinical services (diagnostic to surgery), Medical Equipment and Supplies, training and education.  The process is simple by following the instructions.  However, if you need some help please do not hesitate to contact us at info@globalheartnetwork.net.

New GHN Partnership with Samahope

samahope-logo

Every week numerous needs are posted to the GHN platform, and we at GHN continue to do our best to bring resource matches to the platform so no need goes unmet. Many of you already know about our travel fund campaign (http://www.razoo.com/story/The-Travel-Fund-Campaign-Givingtuesday) to find funds for 10 children from Nigeria, Liberia, and Tanzania in need of life saving heart surgeries to Yaoundé, Cameroon, but our mission does not stop there. We are always diligently working to expand our networks and find more ways to address the needs of our stakeholders.

That is why this week we are proud to announce our new partnership with the wonderful non-profit Samahope. Samahope is a crowdfunding platform dedicated to funding heroic doctors to provide critical medical treatments to women and children who can’t afford them. They currently work in sub-Saharan Africa, South Asia and Latin America. To kick off our partnership, Samahope will be featuring 2 of our dedicated heart surgeons in Chennai, India in order to help them secure funds to provide life-saving heart surgeries to vulnerable children with tetralogy of Fallot.

This is an important partnership: GHN’s network member surgeons often have the capacity to provide the surgery in their hospitals, but many patients are unable to afford the costs. By providing a crowdfunding opportunity to our audience via Samahope, we hope to increase access to surgeries for vulnerable children with tetrology of Fallot who otherwise could not afford it.  Shivani Garg Patel, Co-founder and Managing Director of Samahope, says, “We are excited to partner with the Global Heart Network to help children get the help they need to live a productive life.” To learn more about Samahope please visit http://www.samahope.org.  Our first doctors will be posted on the platform over the coming weeks.

Congenital Heart Defect Awareness Week 2/7-2/14

chdweek

As we continue to serve our network members, please note that today marks the end of  a successful Congenital Heart Defect Awareness Week. CHD Awareness Week is an annual awareness effort to help educate the public about Congenital Heart Defects. Participants include individuals, local support groups, national and local organizations and congenital cardiology centers throughout the world!  GHN reminds you that every day children are dying of congenital heart defect related deaths. Deaths that could be preventable if only access to the life saving surgeries were universal. WE thank you for having spreading the word over this last week, by us all engaging, efforts to educate the public will result in improved early diagnosis, additional funding for support and educational services, scientific research, and access to quality of care for our children and adults.  Join us to be the voice for those around the world suffering from CHD.

 

 

1 comment

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  1. Elena Malagodi

    Hello, Annabel and all the friends of GHN
    Awerness.
    We are taking care of the children of a very poor area of Mbour by building schools and organizing a medical check once a year to all the 600 children of the school Natangué.
    Thanks to GHN we have learned about the congenital heart disease that is responsible for the death of many thousands of Senegalese babies.
    We have access to a great many children through our schools and women’s associations and have been able to describe the symptoms needing urgent investigation.
    It is wonderful to know where to post a need. Thank you for this support, go ahead with your precious endeavor.
    Elena Malagodi
    President of Natangué Sénégal
    elenam@noos.fr

    Like

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